Showing posts with label pro recovery. Show all posts
Showing posts with label pro recovery. Show all posts

Sunday, 26 January 2014

What to say when a loved one has an eating disorder



1. Don’t make valued body judgments
Example sentences:
  • “You look great as you are!”
  • “But you are already thin.”
  • “You look healthy!”
  • “You’re not fat.”
  • “REAL women have curves!”
  • “You don’t want to look emaciated, you want to look buff/toned!”
Why you might want to say it:
  • “Eating disorders happen because people are insecure about how they look… so if I compliment them, they’ll be less insecure, and feel better!’
Why you shouldn’t:
  • Eating disorders are about taking every insecurity and translating it into terms of food/weight/appearance, making appearance insecurity mostly a symptom of a larger problem rather than the whole problem itself. In addition, the accidental message being sent is that an eating disorder is only bad if the person is already thin — and so if that person was fat, their eating disorder would “make sense,” not be as much of a problem, or not bad enough to need help.
What to say instead:
  • Focus on things that don’t depend on weight — activities that they are good at, positive character traits, and occasionally weight-independent physical characteristics
  • “Look how strong you are now!”
  • “You’re much more active/aware/fun to be around since you’ve recovered.”
  • “I like you because you are a great friend.”
  • “You look a lot happier since you’ve recovered.”
  • “Losing or gaining weight won’t change how I feel about you — I love you for who you are, not how you look.”
2. Don’t make it about your issues or insecurities
Example sentences:
  • “If you think YOU’RE fat, you must think I’M obese!”
  • “If you loved me, you would eat more.”
  • “If you won’t eat, then I won’t eat either.”
  • “I know how you feel.”
  • “Are you trying to punish me for something?”
  • “I’m sorry.”
Why you might want to say it:
  • “Love conquers all! Maybe they don’t like themselves enough to recover, but if I make it about me, then they’ll choose to recover for me.”
  • Many people want to say “I know how you feel” or “I’m sorry” out of genuine desire to empathize and help. And while they are more helpful than many of the others, the fact of the matter is that you CAN’T really know how they feel, because you’re not them, and it’s not your fault, so your “sorry” doesn’t really mean anything.
Why you shouldn’t:
  • Eating disorders are an illness, and they are not about hurting anyone else; they are a way to cope with otherwise overwhelming things (depression, anxiety, abuse, trauma, etc.).Heaping more blame on a sick person, and making them focus on you and your discomfort will only make them feel more guilt and shame, making recovery even more difficult. The likely outcome will probably be that they will stop seeing you as a safe ally, and instead feel the increased need to lie or hide things from you in order to not hurt you. This isolates them further, and keeps you from actually being able to be there for them in an effective way.
What to say instead:
  • “I am here for you, because I care about you.”
  • “How can I best support you?”
3. Don’t call attention to what/how much they’re eating
Example sentences:
  • “OMG you’re actually eating!!”
  • “You’re eating again, so I guess you’re recovered!”
  • “You’ll eat THAT, but you won’t eat ___?”
  • “You’re eating a lot… are you going to puke it up later?”
  • “That must be at least ____ calories!” / “Do you know how much fat/carbs/sodium is in that??”
Why you might want to say it:
  • For some of these, well-meaning people might say it as a way to point out progress in recovery, or to make a serious situation a little more lighthearted, or just genuine curiosity. For others, I can only guess that they just weren’t thinking at all.
Why you shouldn’t:
  • Eating disorders are toxic because of obsession; part of recovery is learning to do normal things without obsessing about them or paying them undue attention. When you call attention to something we really need to think less about, it is very triggering and almost universally unhelpful.
What to say instead:
  • “I’m proud of you for all the progress you’ve made in recovery.”
  • “Great job, honey. So how’s that [insert unrelated project] of yours coming along?”
4. DO NOT brush it off, or downplay the severity
Example sentences:
  • “It’s just a phase.”
  • “It’s not that bad.”
  • “You’re not really sick.”
  • “Other people are sicker/starving in China/etc.”
  • “It’s just an extreme diet.”
  • “I know how you feel, dieting is really stressful.”
Why you might want to say it:
  • “It’s just a negative attention-getting tactic; if I don’t reward it, they’ll drop the act.”
  • “I used to have a ‘phase’ like that, and I got over it, so they will, too.”
Why you shouldn’t:
  • If someone trusts you enough to open up about something they’re really struggling with, it is completely invalidating to brush it off as nothing. If you are one of the first people they open up to about something, and you react in this way, it could very well discourage them from getting the help they might desperately need, perhaps until it’s too late.
  • Each experience with disordered eating is different. It could very well be just a “dieting” phase for some people, but it is also the deadliest mental illness for a reason — because for some people, it is much more serious.
What to say instead:
  • Try to reflect back the amount of seriousness that they are bringing to the table. Note that this means you have to listen to nonverbal cues and take into account their personality/confrontational style. If it seems like they are getting something heavy off their chest by telling you this, it is a sign that this means a great deal to them, and that what they are looking for from you is to address that it is a struggle and to offer them support. If they mention a-little-too-casually that they have been dieting a lot recently, try asking more conversational questions that could help them open up a little more about what they’re going through.
  • “It sounds like this is weighing heavily on you. Do you want to talk about it?”
  • “ ‘dieting a lot,’? What do you mean?”
5. Do NOT offer or ask for dieting tips. Don’t talk about dieting at all.
Example sentences:
  • “If you REALLY wanted to lose weight…”
  • “So-and-so lost ___ lbs on such-and-such diet.”
  • “I read about this diet in [insert notoriously fat-shaming magazine]…”
Why you might want to say it:
  • It’s become a kind of way for women to bond with other women, and just for people to talk idly about in general. Cultural pressure has almost literally everyone worried about their weight and so it’s common ground for almost everyone else, which makes it very accessible as personalized small talk. Mostly people just say this kind of stuff because they aren’t really familiar with the profound consequences it has on some people.
Why you shouldn’t:
  • Self-comparison is incredibly addictive and very unhealthy, especially for those with eating disorders. Statements like this are like throwing wood on a fire and then dumping the contents of a gasoline truck onto it.
  • Implying that they should focus on losing weight is terrible. It’s kind of exactly opposite all the goals of recovery.
What to say instead:
  • anything else. Seriously.
6. Don’t blame them for being sick
Example sentences:
  • “Snap out of it!”
  • “Stop feeling sorry for yourself.”
  • “Just eat something already, jeez.”
  • “Why are you making this so hard on me/everyone else?”
  • “You’re being really selfish.”
Why you might want to say it:
  • Frustration, largely, with an issue that you don’t really understand that doesn’t seem to be making the consistent progress you’d want.
  • Wanting to “shake them out of it”
Why you shouldn’t:
  • It doesn’t work
  • It reinforces guilt, blame, the idea that there is something wrong with them, etc. It also sets the expectation that they can just “snap out of it,” (when clearly they can’t, or they certainly would have by now), and when those expectations are internalized and then not met, it’s even more “justification” for the low self-esteem and low sense of self-worth that are major barriers to recovery.
What to say instead
  • “I know that this is very frustrating for you. Remember that I care about you a lot and I am here in whatever capacity I can be.
  • You might also want to say nothing and take a breather until you can rejoin the fray. Being a supporter of someone with a chronic illness, especially a chronic “invisible” illness, is extremely draining and can have serious effects for the people around the suffer as well as the sufferer themself. If you need a few days off in order to clear your head and regain your balance, that is more than fine. Your number one job is to take care of yourself; only when you are really addressing your own needs can you actually be helpful to others. If you need to explain this to your loved one with an eating disorder, reassure them that you still care deeply about them, and you still want to help, but that you need some time to take care of yourself for a while. Try to make sure that they recognize that they have other people in their support network that they can lean on if necessary, that you’re not abandoning them to their own devices. Emphasize that it is not their fault, just that you have your own affairs you need to get in order. Establish exactly what kind of relationship they can expect from you in the meantime — no contact? emergency contact? just friends? no difference in label, just less time/emotional availability? Agree on expectations (both yours of them and theirs of you) and things will hopefully go much more smoothly. But whatever happens, again, your first responsibility is to take care of yourself and you are NOT a bad person if you ultimately have to withdraw from a position as supporter in order to do so.

Tuesday, 3 December 2013

Day 27

27. Create a letter of everything you would write to your eating disorder as if it were a real life person.

Dear Ana

I’ve known you for quite some time now, and you’ve gotten way too involved in my life. Our paths need to be separated. They crossed a long time ago and have kept on crossing ever since, but now it is time for that to stop. Everything gets born and everything dies, our relationship included.
I thought you were nice. I thought the things you said were true, but things are changed now. I’ve realised what you’ve done and have been doing. You’ve messed with my head, making me belief all this bullshit of yours. “Nothing tastes as good as skinny feels” you say? Well I know what tastes better! LIFE! Life tastes better than striving towards perfection.
I am so irritated, frustrated and desperate because of you that I don’t know where to start expressing my real, true feelings. But I am also thankful. I am thankful for the kilos you’ve made me lose. But then again, that might be you messing with my head again. Get out, get out, GET OUT!

You came because I lacked control. Because I lost control, you decided to pop up again and save the day. Except all you did was making it tough, in another way than before, but tough. You saved my life. You saved me from killing myself. You made me feel a bit better with every kilo I lost, but it was never good enough. 17 kg. You took 17 kilos away from me, but I still didn’t get me to the underweight category measured by BMI. You got me to 18,7. And I know that frustrates you as it was SO close! Half a kilo more and we would be UNDERWEIGHT again. A little over three years ago, you got me to BMI 17,7 and of course that wasn’t low enough for you, but back then I fought against you. I had the energy and will, but you never really left. I didn’t get professional help later on as I was way too fat to be suffering from such a demon like you in my head. And whenever I brought you up with anyone, they just looked the other way. I tried to tell them about my experience with you in the past and how the thoughts still hunted me, but they wouldn’t listen. They wouldn’t take it seriously. You hid in the back of my head, getting ready for a backfire, which eventually came.

You don’t want me to talk. You don’t want me to tell anyone as it is “our little secret”. It is embarrassing to tell anyone that you actually are a voice, because I feel that by admitting that I am admitting that I am crazy. Hearing voices isn’t normal, it is the opposite of normal.
I get super nervous when I talk about you because you are there, in my head, screaming at every word I say. I want you to get lost. I want you to leave me alone, for once.
I want my period back (surprisingly). 3 years of irregular or none menstruation is a long time. Now it has been… I don’t remember how long, since I got my last monthly menstruation.  But to illustrate it a bit: After I started recovery (July 2013) I should have gotten my period 5 times. I’ve had it 2, each one for not even a day. I don’t even know if it can be counted as menstruation. 

You’ve taken so much away from me: my womanhood (haha), my ability to socialize without being super awkward, my few friends I had, the spark in my eyes, my happiness, so much excitement towards things like Christmas, birthdays etc. You’ve taken away so many possible good memories and replaced them by memories of tears, desperation, head hanging on the toilet seat, exhausted after stuffing my fingers literally down to the larynx and pressing my stomach up to my lungs.

But you’ve given me so much as well. You’ve given me people who care. You’ve given me so many really good friends, two that I can define as best friends. You’ve brought my family closer to me, supporting me and showing me that they care. You’ve made me and my grandma have a better relationship, and showed me that she and I are really much alike, more than I could ever imagine. You’ve made my other grandma and I so much closer and I can proudly define my grandma as one of my very close friends.
Inside my head, you’ve made my life miserable. But outside, in the real world, you’ve made me realise that I’ve got people around me that love me (or well, you’ve made them show me that they care).  And that messes really with my head because I start questioning if I get healthy, people will stop caring. They will stop noticing me. Stop loving me. I don’t want that. But I don’t want you either. I am afraid that I will lose my support and end in the same black hole as I was in 6 months ago. I want to thrive, but I also want to survive. That’s the problem.